| Off Topic > Off Topic |
| Charlie Gard, center of international court battle, dies in hospice care |
| << < (4/12) > >> |
| Acerblock:
--- Quote from: Planr on July 28, 2017, 03:15:58 PM ---Fine socialist healthcare at work. --- End quote --- --- Quote from: Rally on July 28, 2017, 05:38:09 PM ---< socialists would rather murder a baby than admit American healthcare could cure it muh moral high ground --- End quote --- http://www.bailii.org/ew/cases/EWHC/Fam/2017/972.html --- Quote ---"I was aware that I was to hear evidence from the doctor[1] in the USA who was, reportedly, offering what had been referred to as "pioneering treatment". Before he gave evidence, I encouraged the treating consultant at Great Ormond Street Hospital to speak with him which he was able and willing to do. I am truly grateful to these experts for the time that they have given to this case. The outcome of that discussion is illuminating. The doctor in the USA said as follows: "Seeing the documents this morning has been very helpful. I can understand the opinions that he is so severely affected by encephalopathy that any attempt at therapy would be futile. I agree that it is very unlikely that he will improve with that therapy. It is unlikely." However, the US doctor made it clear that, were Charlie in the United States, he would treat him if the parents so desired and could pay for it. As I have already said, funding in this case is not an issue. The US doctor also confirmed during this telephone conversation that he had never treated with nucleoside therapy anyone who had encephalopathy. Therefore, he was unable to indicate from any scientific basis whether a patient with encephalopathy would respond positively. Charlie suffers from the RRM2B mutation of MDDS. No one in the world has ever treated this form of MDDS with nucleoside therapy, although patients with a different strain, TK2, have received nucleoside therapy with some recorded benefit. In mouse models, the benefit to TK2 patients was put at about 4% of life expectancy. There is no evidence that nucleoside therapy can cross the blood/brain barrier which it must do to treat RRM2B, although the US doctor expressed the hope that it might cross that barrier. There is unanimity among the experts from whom I have heard that nucleoside therapy cannot reverse structural brain damage. I dare say that medical science may benefit objectively from the experiment, but experimentation cannot be in Charlie's best interests unless there is a prospect of benefit for him." --- End quote --- Good job being nuanced. |
| Deus Ex:
How do cases like this become international news? So weird. Sucks for the family, hope they can recover, dunno why people are bringing up healthcare when the baby was doomed from the start. I can understand if we had an actual treatment that would've helped but that simply isn't the case. |
| Mr Queeba:
you have to admit, its really sad that the parents werent allowed to have some more time with their son before he died. |
| Master Matthew²:
--- Quote from: Doughboy on July 28, 2017, 03:43:42 PM ---i've read that the experimental treatment hadn't been trialed on mice i'd think experimenting on a baby loses some moral points --- End quote --- Well, tbh that wasnt on the majority of people's minds. And now it looks like they would rather let a baby die than cooperate with the US because the Annoying Orange Administration is currently at the head. |
| IkeTheGeneric:
--- Quote from: Master Matthew² on July 28, 2017, 05:47:32 PM ---And now it looks like they would rather let a baby die than cooperate with the US --- End quote --- It only looks that way to you because you have a skewed sense of reality. The genetic condition the baby had didn't give him great chances of survival, and the doctors who could've performed the procedure straight up said it probably wouldn't have worked, and the present brain damage couldn't have been reversed. It's weird that there was this much intervention in them going overseas to get treatment, but it's probably for a reason different from your idea of how it went down. |
| Navigation |
| Message Index |
| Next page |
| Previous page |