Charlie Gard, center of international court battle, dies in hospice care

[Acerblock]

Fine socialist healthcare at work.

< socialists would rather murder a baby than admit American healthcare could cure it

muh moral high ground

http://www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

"I was aware that I was to hear evidence from the doctor[1] in the USA who was, reportedly, offering what had been referred to as "pioneering treatment". Before he gave evidence, I encouraged the treating consultant at Great Ormond Street Hospital to speak with him which he was able and willing to do. I am truly grateful to these experts for the time that they have given to this case. The outcome of that discussion is illuminating. The doctor in the USA said as follows:

"Seeing the documents this morning has been very helpful. I can understand the opinions that he is so severely affected by encephalopathy that any attempt at therapy would be futile. I agree that it is very unlikely that he will improve with that therapy. It is unlikely."

However, the US doctor made it clear that, were Charlie in the United States, he would treat him if the parents so desired and could pay for it. As I have already said, funding in this case is not an issue. The US doctor also confirmed during this telephone conversation that he had never treated with nucleoside therapy anyone who had encephalopathy. Therefore, he was unable to indicate from any scientific basis whether a patient with encephalopathy would respond positively.

Charlie suffers from the RRM2B mutation of MDDS. No one in the world has ever treated this form of MDDS with nucleoside therapy, although patients with a different strain, TK2, have received nucleoside therapy with some recorded benefit. In mouse models, the benefit to TK2 patients was put at about 4% of life expectancy. There is no evidence that nucleoside therapy can cross the blood/brain barrier which it must do to treat RRM2B, although the US doctor expressed the hope that it might cross that barrier.

There is unanimity among the experts from whom I have heard that nucleoside therapy cannot reverse structural brain damage. I dare say that medical science may benefit objectively from the experiment, but experimentation cannot be in Charlie's best interests unless there is a prospect of benefit for him."

Good job being nuanced.

[Ad Bot]

[Deus Ex]

How do cases like this become international news? So weird. Sucks for the family, hope they can recover, dunno why people are bringing up healthcare when the baby was doomed from the start. I can understand if we had an actual treatment that would've helped but that simply isn't the case.

[Mr Queeba]

you have to admit, its really sad that the parents werent allowed to have some more time with their son before he died.

[Master Matthew²]

i've read that the experimental treatment hadn't been trialed on mice
i'd think experimenting on a baby loses some moral points

Well, tbh that wasnt on the majority of people's minds.
And now it looks like they would rather let a baby die than cooperate with the US because the Annoying Orange Administration is currently at the head.

[IkeTheGeneric]

And now it looks like they would rather let a baby die than cooperate with the US

It only looks that way to you because you have a skewed sense of reality. The genetic condition the baby had didn't give him great chances of survival, and the doctors who could've performed the procedure straight up said it probably wouldn't have worked, and the present brain damage couldn't have been reversed.

It's weird that there was this much intervention in them going overseas to get treatment, but it's probably for a reason different from your idea of how it went down.

[Acerblock]

Well, tbh that wasnt on the majority of people's minds.
And now it looks like they would rather let a baby die than cooperate with the US because the Annoying Orange Administration is currently at the head.

http://www.bailii.org/ew/cases/EWHC/Fam/2017/972.html
Good job being nuanced.

[sorrel]

you have to admit, its really sad that the parents werent allowed to have some more time with their son before he died.

[Rally]

http://www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

Looks like a mile long list of excuses to me buddy. The people who are responsible for UK's healthcare, both politicians and the people who voted them in, should be publicly hanged for murdering this child.

[Acerblock]

Looks like a mile long list of excuses to me buddy. The people who are responsible for UK's healthcare, both politicians and the people who voted them in, should be publicly hanged for murdering this child.

And the extensive sources from the court case are reaching too far.

[Rally]

And the extensive sources from the court case are reaching too far.

I don't understand why you'd support child murder. What's wrong with liberals these days?

[Acerblock]

I don't understand why you'd support child murder. What's wrong with liberals these days?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3625391/

Although MDS are severe disorders with poor prognosis in the majority of affected individuals, no curative therapy is available for any of these disorders.

Dude what the actual forget, the hospital and government did not murder Charlie, in fact he was on life support. His condition was so drastic that he was going to die, his brain was irreversibly damaged. I mean he did not have properly functioning DNA in his cells' mitochondria, you know, the little precious things that produce energy for the building blocks of your body.

It's sad to say, but he was doomed from the beginning. For Christ's sake, even the American doctor admitted after reading documents on his status that were later brought to him that there was no hope for the poor little boy.

And honestly, all this bullstuff about "death panels" and "socialized medicine is deadly" is disgraceful. Shame on you for accusing people on the left for supporting child murder, what is wrong with you?

[Rally]

I do agree with you, just not about the murdering children for the sake of socialism part though. We probably should just let people who have a low chance of surviving just die, then cancer patients wouldn't be able to get any treatment, and the cancer industry would be forced to release the cure in order to continue making bank.

[PhantOS]

there's either a lot of trolls here or a lot of actual loving psychopaths. its hard to tell which group they fall into but it could be both

[Acerblock]

I do agree with you, just not about the murdering children for the sake of socialism part though. We probably should just let people who have a low chance of surviving just die, then cancer patients wouldn't be able to get any treatment, and the cancer industry would be forced to release the cure in order to continue making bank.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3625391/

No words for you honestly.

there's either a lot of trolls here or a lot of actual loving psychopaths. its hard to tell which group they fall into but it could be both

[Rally]

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3625391/

All I see is an illness that socialists refused to even attempt to cure.