Author Topic: Rigel's Glaucoma: Redux  (Read 182 times)

Sup y'all, someone sent me a message asking me about my condition so I figured I'd update everyone if anyone else was interested.
Previous thread

So I stopped posting in the thread because nothing was really changing. Got diagnosed at 15 which sucked, but I haven't really lost any vision since then either which is nice. So Glaucoma is mostly caused by a build up of Intra-Ocular Pressure (IOP) due to a fluid called "aqueous humor" that naturally flows through the eye or other causes. The medicine was annoying for a while. I originally had a bunch of eye-drops which I'll list the effects of, starting with "Dorzolamide" which stung like lemon juice to apply, but I never really learned how it helped. "Brimonidine" didn't hurt to apply, but it made me really sleepy as a side-effect, and worked by getting my brain to produce less aqueous humor. "Latanoprost" didn't have any noticeable side-effects, but it barely worked on me. It was supposed to improve drainage. "Pilocarpine" was the one I hated the most by far, but it was the most effective at reducing pressure. It improved drainage, and contracted my pupils. The pupilary contraction was meant to make it easier for surgery, but I only ever went through one. It sucked because it made me really near-sighted for a few hours after use, and I had to use it 4 times a day, and the new eyesight was never stable, so I couldn't get glasses that would reliably help either. I also had a pill called "Diamox" that was supposed to help, but didn't really and made things taste different.

Anyway, there was a new medicine called "Rocklatan" which works a lot like Latanoprost but actually works really well for me to the point where I dropped every other medication besides Brimonidine and now the eye pressure is pretty stable. Only problem is that it makes my eyes red as if I've constantly been smoking weed, and it costs so much that I'm still paying $60 per bottle even after insurance covers most of it. By comparison, the co-pay for everything else was like $2 per medication.

I did at one point get a surgery that was supposed to improve natural drainage, but it didn't work somehow. There were no complications, it just didn't improve what it needed to by any good amount after a week of healing. At least I got a video out of it! (Warning, it's a surgery video) I got stitches in my eye, and it felt real weird when they took them out. They had to press on my eye to "break" the stitching, and then pull them out with tweezers. Best way I could say to replicate the feeling is to take a single hair and pinch it between your thumb and pointer finger, then pull it through with your other hand. It wasn't painful at all, just a strange sensation.

Now the plan is to just check the pressure every-so-often and hope the medicine keeps working. Or for future research to yield promising results for ocular regeneration, which there are a few things being tested already. My left eye can barely see anything, and my right eye is mostly fine, so besides the occasional pressure headache or poor depth perception things are okay.

I think I covered nearly everything, I'll be happy to answer any questions!

Sup y'all, someone sent me a message asking me about my condition so I figured I'd update everyone if anyone else was interested.
Previous thread

So I stopped posting in the thread because nothing was really changing. Got diagnosed at 15 which sucked, but I haven't really lost any vision since then either which is nice. So Glaucoma is mostly caused by a build up of Intra-Ocular Pressure (IOP) due to a fluid called "aqueous humor" that naturally flows through the eye or other causes. The medicine was annoying for a while. I originally had a bunch of eye-drops which I'll list the effects of, starting with "Dorzolamide" which stung like lemon juice to apply, but I never really learned how it helped. "Brimonidine" didn't hurt to apply, but it made me really sleepy as a side-effect, and worked by getting my brain to produce less aqueous humor. "Latanoprost" didn't have any noticeable side-effects, but it barely worked on me. It was supposed to improve drainage. "Pilocarpine" was the one I hated the most by far, but it was the most effective at reducing pressure. It improved drainage, and contracted my pupils. The pupilary contraction was meant to make it easier for surgery, but I only ever went through one. It sucked because it made me really near-sighted for a few hours after use, and I had to use it 4 times a day, and the new eyesight was never stable, so I couldn't get glasses that would reliably help either. I also had a pill called "Diamox" that was supposed to help, but didn't really and made things taste different.

Anyway, there was a new medicine called "Rocklatan" which works a lot like Latanoprost but actually works really well for me to the point where I dropped every other medication besides Brimonidine and now the eye pressure is pretty stable. Only problem is that it makes my eyes red as if I've constantly been smoking weed, and it costs so much that I'm still paying $60 per bottle even after insurance covers most of it. By comparison, the co-pay for everything else was like $2 per medication.

I did at one point get a surgery that was supposed to improve natural drainage, but it didn't work somehow. There were no complications, it just didn't improve what it needed to by any good amount after a week of healing. At least I got a video out of it! (Warning, it's a surgery video) I got stitches in my eye, and it felt real weird when they took them out. They had to press on my eye to "break" the stitching, and then pull them out with tweezers. Best way I could say to replicate the feeling is to take a single hair and pinch it between your thumb and pointer finger, then pull it through with your other hand. It wasn't painful at all, just a strange sensation.

Now the plan is to just check the pressure every-so-often and hope the medicine keeps working. Or for future research to yield promising results for ocular regeneration, which there are a few things being tested already. My left eye can barely see anything, and my right eye is mostly fine, so besides the occasional pressure headache or poor depth perception things are okay.

I think I covered nearly everything, I'll be happy to answer any questions!

User was banned for this post
« Last Edit: January 13, 2022, 12:10:38 PM by Badspot »


User was banned for this post
The BLF battle royale continues

On topic:
I got stitches in my eye, and it felt real weird when they took them out. They had to press on my eye to "break" the stitching, and then pull them out with tweezers. Best way I could say to replicate the feeling is to take a single hair and pinch it between your thumb and pointer finger, then pull it through with your other hand. It wasn't painful at all, just a strange sensation.
You say it wasn't painful, but this sounds very unpleasant

Anyway, good luck with your situation, hopefully your vision problem clears up, or the best it can, at least

What just happened?
I dont think its real. Kenny is trolling for attention. If anyone is to be banned for spam, tony is long overdue.

Glad to hear you can still see! My hopes are with you, I am really happy Rocklatan was able to work for you!

Did you think the side affects from the treatments you had before Rocklatan still had enough pros to be worth it? Just curious how you were going that long without it.

I dont think its real. Kenny is trolling for attention. If anyone is to be banned for spam, tony is long overdue.
It's real, it's edited by Badspot, and faking a ban is also a bannable offense.

someone call in his older brother sheepocpolsesese to straight his bones

i'm glad you are still viewing fine

insert future is bright pun or something of the like here

I dont think its real. Kenny is trolling for attention. If anyone is to be banned for spam, tony is long overdue.
It's real



Did you think the side affects from the treatments you had before Rocklatan still had enough pros to be worth it? Just curious how you were going that long without it.
Bro Pilocarpine SUCKED. I hated it so much I wasn't using it as much as I should've. Thankfully nothing bad happened. I kept asking myself what the point of taking it was, when it was supposed to preserve my sight, but still forgeted it in a way that glasses couldn't fix. I could barely read a computer screen let alone do anything else worthwhile. I still use it very rarely when I feel the pressure shoot up or I forget to get more rocklatan but that happens like maybe once every two months.